About the Consortium

The goal of this international consortium is to improve care of patients with non-compaction cardiomyopathy. We hypothesize that comprehensive analysis of clinical, genetic, structural and functional information will improve risk stratification. In addition, we hypothesize that detailed structural analysis will allow for differentiation of pathological and benign patterns of non-compaction.

Principal Investigators

Koen Nieman

Koen Nieman

Stanford University

Wilson Tang

Wilson Tang

The Cleveland Clinic

Investigators from the five institutions below are the founders of the NONCOMPACT Consortium

Stanford University
Matthew Wheeler

Matthew Wheeler

Koen Nieman

Koen Nieman

Daniel Rubin

Daniel Rubin

Francois Haddad

Francois Haddad

Katie DeSutter

Katie DeSutter

Cleveland Clinic
Wilson Tang

Wilson Tang

Debbie Kwon

Debbie Kwon

University of Pennsylvania
Anjali Owens

Anjali Owens

Harold Litt

Harold Litt

Erasmus Medical Center
Kadir Caliskan

Kadir Caliskan

Ricardo Budde

Ricardo Budde

Alexander Hirsch

Alexander Hirsch

Seoul National University Hospital
Seung-Pyo Lee

Seung-Pyo Lee

Whal Lee

Whal Lee

Study Funding

The International Consortium for Multimodality Phenotyping in Adults with Non-compaction (NONCOMPACT) is funded by the National Institutes of Health (NHLBI R01HL146754).